Sunday, November 2, 2008

What Causes Warts On Eyelids

The confirmation of the story of Anna

Anna was born at term, physiological birth, weight 3270g. Report a broken right clavicle due to the position during labor that went into place by itself.

All ok until the early vaccinations, particularly the second where, after a few days began to show something strange: the clones with his eyes and his face grimace.

The pediatrician recommended a visit to the psychiatrist by video EEG.

The track highlights a trend in epileptic brain. We recommend that the patient to understand their causes. The

suspicion focuses on metabolic diseases, but was soon denied.

Trasfrerita from pediatrics to Casa Sollievo della Sofferenza San Giovanni Rotondo in the department of neurology at the Infant Jesus in Rome. Surveys on surveys we come to the conclusion that Anna suffers from a rare form of epilepsy, partial seizures, or suffer from malignant migrant children.

The onset of this form of epilepsy occurs within the first 6 months of life and in literature reports that most children suffering from it do not reach the first year of life.

All in all going well in the sense that the critical situation was quite under control, until Anna had no fever, longer that doctors had discovered that harbored a pneumonia-aspiration. The prolongation of the fever has caused Anna to enter into a status epilepticus and consequently sedarla physicians have led to drug-induced coma from which he was released after 10 days. Meanwhile

already rumored that the aspiration-pneumonia had been caused by poor coordination of swallowing, plus all those drugs made in the intensive care have resulted in many micro-ulcers in the esophagus, had become inevitable, therefore, place a peg .

ANNA is currently in fair condition, meaning that we live with his illness.

The cause of this form of epilepsy is quite unknown and it does not make us calm because you know that there is a way out, we parents would not hesitate to try

Anna has pluriquotidiane crisis, its anti-epileptic therapy is a combination of 4 different drugs (because they are not drug, is refractory) that do not contribute at all to improve his mental and motor retardation.

Anna is 3 years old and does not control his head, unable to sit, not talking, not walking, does not cry because it is too sedated, do not eat by mouth because it has the peg.

But despite all this year and leads a normal life has started to attend the first year of kindergarten. Here it is among his new friends, and among its many attente e premurose maestre.

Monday, October 20, 2008

Molly's Mansion Hutch

Letizia went back to school. The history of Syria

Ed eccoci arrivati al compimento dei cinque anni di Letizia.
Come l'anno scorso, abbiamo deciso di festeggiarlo a scuola tra bimbi della sua età .
Lei è felice come sempre tra i colori e la gioia di tutti i bimbi pronti a festeggiarla. Come potete vedere nelle sue foto, è sempre molto serena e raggiante.
Quest'anno abbiamo una novità, la Leti ha deciso di tenermi fuori dalla sua sezione non mi vuole vicino, entro solo in caso di neccesità (per aspirarla),
Lei vuole che tutto sia nella normalità come le bimbe della sua età, senza la presenza della mamma .
Contenta, torna a casa e non vede l' ora di raccontarlo his brothers and his father have remained alone in the section.
Quest 'year we made the choice to be next to Letizia only the figure of educator and support. Believe me, it works. What is the
Letizia during the winter can not attend school but her teacher will at home.
The director of our school has decided to buy a laptop for
do a video conference, so that the child does not lose touch with his friends.
Her teachers and her nurses are all working to the progam augmentative communication. We are working with images, colors, symbols
with the hope that very soon we will be able to apply a communicator with which you can express his thoughts.
Dear mothers, in the latter period, the progress of the Leti are many and I'm satisfied and I can only thank the Lord.
thank the director of the kindergarten Ottolenghi Marina di Ravenna, which has given so much to the educational situation of Leti respecting our decisions as parents. I thank the teachers, their teachers and all staff that turns them around, because if the joy is so serene, it is also due to them. Thanks. Mamma
mariangela.

Friday, September 19, 2008

2010 Pros And Cons For Convection Oven



Syria, this is the name in my angel. Eyes and raven black hair, came from a very normal and quick delivery, everything in perfect order. The first symptoms, light hypotonia, but otherwise completely normal, only to eight months, a more thorough diagnosis led us to the conclusion of a spinal muscular atrophy. Up to fourteen months fine, then took refuge in the intensive care unit for respiratory failure Santobono, artificially incubated and nurtured, we decided to peg and a tracheotomy. After eight months of intensive care my angel is gone home, and then try to make him live a "normal". You go out to do shopping at the supermarket, you go to sea, and everything that makes a full-fledged family.

Tra i suoi impegni, come la fisioterapia, la logopedia, c’è la scuola, una delle migliori della classe, se non la prima. Gioca con il fratello maggiore, con il quale ha un rapporto stupendo e del tutto normale, poiché dato la sua forte personalità, e il suo carattere napoletano è sempre al centro delle situazioni. Circola per casa con una sedia elettronica, ed è autonoma nei suoi spostamenti, riesce a scrivere con la manina i suoi compiti scolastici. Con il computer non ci sono ostacoli per lei, visto che usa un mouse per le sue possibilità motorie. Infine ha una parlantina davvero da riempire la testa per una giornata intera.

Alla fine il miracolo ce l’ho io davanti tutte le mattine, quando si sveglia e comincia ad elencare le cose che farà durante l’intera giornata, e la sera è stanca e felice per esserci riuscita.


Mamma di Syria .


Sunday, September 14, 2008

How To Make A Ny Yankee Logo Cake

10 COMANDAMEN TI NOT FOR DISABLED

10 COMANDAMENTI PER NON DISABILI-


  1. GUARDA ME, NON LA MIA DISABILITà.
  2. ACCETTAMI.
  3. ASK ME TO KNOW SOMETHING ABOUT ME, NOT TO OTHERS.
  4. NOT KEEP CHILDREN AWAY FROM ME, my disability is not infected.
  5. TAKE SERIOUSLY EVEN IF YOU THINK YOU HAVE A PLUS.
  6. GIVE ME TIME I HAVE OTHER THAN YOUR RHYTHMS.
  7. ENJOY WHEN I CAN NOT ALONE AND YOU NEED HELP.
  8. HELP BUT DOES NOT EXCLUDE FROM DECISIONS.
  9. RESPECT MY CONDITION, ONE DAY COULD ALSO BECOME YOUR. How would you treat me
  10. ESSSERE TREATY !!!!!!


10 HOW TO AVOID BURNOUT .
  1. feel obligated to put CONFINI.NON OF DIR SI ALLE RICHIESTE DEGLI ALTRI.
  2. IMPARATE A FARE DELLE PRIORITà.
  3. PONETEVI DEI LIMITI REALISTICI.ACCETATE IL FATTO CHE NON POTETE FARE TUTTO E CHE NESSUNO, NEMMENO VOI, SE LO PUò ASPETTARE.
  4. SE VI SIETE DATI DEI LIMITI REALISTICI, SAPRETE QUANDO è TEMPO DI CHIEDERE AIUTO PRIMA DI TROVARVI IN CRISI.
  5. DELEGATE LA RESPONSABILITà
  6. SE QUALCUNO VUOLE AIUTARVI,ACCETTATELO.ANZI CERCATE AIUTO AD ALTRI
  7. FESTEGGIATE I SUCCESSI E GLI OBBIETTIVI RAGGIUNTI ,PICCOLI O GRANDI CHE SIANO.
  8. PRENDETEVI DELLE PAUSE, ANCHE DI 10 MINUTI IN UNA GIORNATA PER FARE UNA COSA CHE VI DIVERTE E VI Dà PACE ; PUò AIUTARVI A RICARICARVI.
  9. QUANDO CHI ASSISTE SI SENTE STANCO è ESSENZIALE CHE RICEVA AIUTO DA MEMBRI DELLA FAMIGLIA O DA OPERATORI PROFESSIONALI.
  10. CAPITE CHE CHIEDERE AIUTO è SEGNO DI FORZA E NON DI DEBOLEZZA DA ENTRAMBE LE PARTI,ASSISTITO E ASSISTENTE;NESSUNO DI NOI è SUPERMAN!!!!!!!
Mariangela, mamma sma1